Welcome to Maddisons Blog

Welcome to Madison's Small world. We are providing this website for family and friends to keep up with little Maddie's progress by providing pictures and videos and daily doctor and nurse updates. So check back often and please comment on the site and pictures as we know that many of you live far from us and you may want to know information that we haven't provided.

Sunday, January 20, 2013

August 21, 2012

Five days later Madison is finally being released from Primary Children's hospital. It was not the norm for children to stay that long for the simple procedure she had done, but some don't progress and eat and drink right away. It was better to make sure she didn't become dehydrated but once we convinced the doctors she is a bigger bottle drinker than a solid food eater, they finally released us once she was drinking a certain amount of fluids. Even though it was a tough stay, Madison sure enjoyed the wagon rides, the visits from volunteer doggies, free books and trips to the children's art room. Madison had to have an IV put in 3x while she was in the hospital.One replacement was after she stuck her hand in a bowl of spaghetios, the nurse worried it may have gotten contaminated. We argued the need since she was drinking on her own at this point, and because it took the iv team 3 tries before they were able to get the last one in. It was hospital policy in case of emergency so she had to be stuck again. When the same nurse that came previous we said she wasn't allowed to try and she just assisted. Her coworker got it in on the first try. The next day we went home. For a week Madison ate nothing but ice chips and otter pops and let her bottle drip down her throat. It took 18 days before she ate her first solid food and unfortuantely her experience in the hospital gave her an aversion to loratab and also to medicine syrynges. She has an absolute fit if one is headed her way. Luckily, the experience as dreadful as it was, was totally worth her not having sleep apnea or trouble swalling food. She has more energy now and is sleeping better. Eating better too even though to mom and dad it still seems she doesn't eat enough to get by. But she is still a bottle lover.

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